Privacy Policy

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What types of personal information we collect about you

When you engage with SurvivorTesting or visit or use our Services, we collect a variety of information. In general, the type and amount of information we collect on you will depend on how you choose to interact with SurvivorTesting. For instance, if you are a patient or caregiver contacting us for assistance, we will need different information to assist you than if you are using our website to gather information on cancer-related topics or donate to SurvivorTesting.
SurvivorTesting collects information that identifies you as an individual or information which is linked or linkable to you as an individual, which will collectively be referred to throughout this Privacy Statement as “Personal Information”: including contact information, demographic information, health and financial information, as well as call recordings and transcripts.
Contact Information and Preferences. We may request contact information such as your name, mailing address, telephone number, e-mail address, and your preferences for how you would like to be contacted by SurvivorTesting.
Demographic Information. We may request limited demographic information such as your gender, race or ethnicity, marital status, geographic location and/or primary language.
Health Information. We may request limited health information about you such as your relationship to cancer or, if applicable, your type of cancer, date of diagnosis, stage, or current treatment. For instance, this information may be needed to assist you if you contact SurvivorTesting seeking cancer information or requesting support from SurvivorTesting. If you register to participate in a Society event, we may ask you about your relationship to cancer so that we can let you know about special activities for caregivers and survivors. This health information may be transmitted electronically for the uses and/or disclosures described in this Privacy Statement.
Financial Information. If you make a donation to SurvivorTesting or make a retail purchase on a Society Site, we will collect payment information such as your credit card number to process your transaction. We may use a third-party payment service to process payments made through the Services. We will retain your credit card information only for as long as necessary to process the transaction.
Call Recordings and Chat Transcripts. If you contact SurvivorTesting for information or assistance by calling our National Cancer Information Center or online via the “Contact Us” chat feature, we may record your call or maintain a transcript of the chat for training and quality assurance purposes. The information contained in these transcripts will depend on what you voluntarily provide to SurvivorTesting.
How we collect personal information about you
SurvivorTesting and its service providers may collect Personal Information in a variety of instances. For example, we may collect information about you in the following circumstances:
Health Provider, Health Plan or Caregiver Referral. Your healthcare provider or health plan may put you in touch with SurvivorTesting if they believe we have information or resources that can assist you with your care or cancer journey. These referrals may occur through SurvivorTesting’s Clinician’s Portal, fax or another referral method. If you are referred to SurvivorTesting through a healthcare provider or health plan, we will receive contact and demographic information, as well as limited health information from the healthcare provider or health plan.
Third-party Fundraising Campaigns, Promotions or Events. We may use or interact with third-parties to conduct fundraising campaigns, promotions or events, including online platforms such as Crowdrise or PledgeIt. In these instances, we may receive access to donor reports which includes donor name, contact information and donation amount. We also may receive your Personal Information if you respond to a cause-related marketing campaign or other promotion benefiting SurvivorTesting that is conducted by a corporate partner.
Social Media Interfaces. If you elect to connect your social media account to your Site account, certain Personal Information from your social media account will be shared with us, which may include Personal Information that is part of your profile or your friends’ profiles; in addition, if you log-in to our website using your social media account, use a “like” button or use other social media features while visiting our website, those social media companies may collect information about you. Your interactions with social media companies and the use of their features are governed by their privacy policies.
How we may use your personal information
We and our service providers may use Personal Information for the following purposes:
Mission Delivery and Support Operations. We will use your Personal Information to respond to your inquiries and to provide you with the information, resources and support services you request. We may use your Personal Information to help us better understand the individuals we serve, to better communicate with you, and to better serve you and your community with relevant programs, services and information. We may also use your Personal Information to develop, evaluate and improve our programs and services. For instance, we may contact you with a survey seeking voluntary feedback on services you have received.
We may use your Personal Information to keep you informed about cancer-related news developments, to notify you of Society services that may be of interest to you, to invite you to upcoming Society events in your area (such as Relay For Life®), to request voluntary time or monetary contributions to SurvivorTesting, or to request your participation in a Society research study.
If you are referred to SurvivorTesting through your healthcare provider and/or health plan, we will use and disclose your Personal Information as necessary, including electronically, to provide you with the assistance, programs or services you have requested, as well as program follow up and evaluation. For example, if you need lodging assistance related to your treatment, your healthcare provider may provide your information to SurvivorTesting so that we can evaluate eligibility and availability for placement in one of SurvivorTesting’s Partners Program.
If a patient referral is your first interaction with SurvivorTesting, we will limit our contact with you to the provision of services and follow up, unless you consent to receiving communication(s) regarding additional resources, opportunities or engagement. If you have an existing relationship with SurvivorTesting at the time of referral, we will maintain your current contact preferences and apply them to the information we receive from your referring provider or health plan. If you choose to later engage with SurvivorTesting in another way, like by participating in a Society event, volunteering for SurvivorTesting, or donating to SurvivorTesting, we may use your Personal Information and/or contact you for purposes related to that engagement.
Data Analytics. We also perform data analysis and research activities to gain a greater general understanding of cancer, cancer treatment and the related needs of patients and their caregivers. This analysis can help us improve patient experiences, mission delivery, and support.
Other Business Purposes. We may use Personal Information for other business purposes, such as conducting audits, fraud monitoring and prevention, developing new services, enhancing, improving or modifying our programs and our Services, identifying usage trends, determining the effectiveness of fundraising campaigns and mission activities, and updating and expanding our business activities.
With your consent. In addition to the other uses described in this section, we may also use your information as you expressly authorize us to do so.
With whom we may share your personal information
Your Personal Information may be shared with:
Third-Party Service Providers. We may need to share Personal Information with third-parties that provide operational services on our behalf (such as website hosting, information technology and infrastructure, data analytics, email delivery, order fulfillment, auditing or other services) or that assist SurvivorTesting in providing you with support and resources.
Society Affiliates. We may provide your information to affiliated organizations that share a common mission with SurvivorTesting, such as ACS CAN.
Referring Health Care Providers and Health Care Plans. We may also report back to your referring provider regarding your usage of Society programs and services or to coordinate treatment-related services.
Mission Collaborators. We may also collaborate with organizations to provide or improve SurvivorTesting’s services and operations. For example, we may share with organizations that are working with SurvivorTesting to provide free or discounted transportation or lodging services to our constituents or with organizations to conduct data analytics projects that allow us to better understand the use of our services.
Social Media. You may share Personal Information with your friends associated with your social media account, to other website users and to your social media account provider, in connection with your social sharing activity. By connecting your Society account with your social media account, you authorize us to share information with your social media account provider, and you understand that the use of the information we share will be governed by the social media provider’s privacy policy. Please note that any information you post within these public forums or social media pages may become public and may be read, collected, and used by anyone. Please exercise caution when deciding whether to disclose your Personal Information in these forums.
Other Uses or Disclosures of Personal Information. We may also use and disclose your Personal Information as we believe to be necessary or appropriate: (a) to comply with applicable law, which may include laws outside your country of residence, to respond to requests from public and government authorities, which may include authorities outside your country of residence, to cooperate with law enforcement, or for other legal reasons; (b) to enforce our Terms of Use; (c) to protect our rights, privacy, safety or property, and/or that of our affiliates, you or others; and (d) under circumstances we believe appropriate to coordinate treatment related services with your provider or health plan, or for permissible public health purposes such as cancer surveillance. In addition, SurvivorTesting may use, disclose or transfer your information to a third-party in the event of any reorganization, merger, sale, joint venture, assignment, transfer or other disposition of all or any portion of our organization (including in connection with any bankruptcy or similar proceedings).
Your Consent. In addition to the other disclosures described in this section, we may also disclose your information as you expressly authorize us to do so.
Other information collected
SurvivorTesting may also collect information that does not reveal your specific identity or does not directly relate to an identifiable individual, referred to throughout this Privacy Statement as “Other Information,” including browser and device information, App usage data, Internet Protocol address, information collected through cookies, pixel tags and other technologies. Other Information also includes information that has been anonymized or aggregated in a manner that it no longer reveals your specific identity.
If we are required to treat Other Information as Personal Information under applicable law, then we may use and share it for the purposes for which we use and share Personal Information as detailed in this Privacy Statement.
Browser and Device Information. Certain information is collected by most browsers or automatically through your device, such as your Media Access Control (MAC) address, computer type (Windows or Mac), screen resolution, operating system name and version, device manufacturer and model, language, Internet browser type and version and the name and version of the Services (such as the App) you are using. We use this information to ensure that the Services function properly.
Internet Protocol Address. Your IP address is automatically assigned to your computer by your Internet Service Provider. An IP address may be identified and logged automatically in our server log files whenever a user accesses the Services, along with the time of the visit and the page(s) that were visited. Collecting IP addresses is standard practice and is done automatically by many websites, applications, and other services. We use IP addresses for purposes such as calculating usage levels, diagnosing server problems and administering the Services. We may also derive your approximate location from your IP address.
Web Server Traffic Pattern Information and Browsing History. We collect standard web server traffic pattern information and your browsing history. General traffic, Site usage, browser information and length of stay information is collected and stored in log files.
Cookies. We use “cookies,” small files that are sent to your web browser and stored on your computer’s hard drive, to enhance your online experience. The cookies collect information about your use of our Services, such as the type of browser you use (such as Google Chrome or Internet Explorer), your home domain or Internet service provider, your referrer URL (which is the URL for the website that you were viewing prior to visiting the website), how you were directed to the Services, which specific pages you accessed, how long you view each page, the time and date you access our Services and anonymous traffic data. If you do not want information collected through the use of cookies, most browsers allow you to automatically decline cookies or be given the choice of declining or accepting a particular cookie (or cookies) from a particular website. You may also wish to refer to If, however, you do not accept cookies, you may experience some inconvenience in your use of the Services.
Using pixel tags and other similar technologies. Pixel tags (also known as web beacons and clear GIFs) may be used to, among other things, track the actions of users of the Services (including email recipients), measure the success of our marketing campaigns and compile statistics about usage of the Services and response rates.
Analytics. We use Google Analytics, which uses cookies and similar technologies to collect and analyze information about the use of the Services and report on activities and trends. This service may also collect information regarding the use of other websites, apps, and online resources. You can learn about Google’s practices by going to‌partners/ and opt-out of them by downloading the Google Analytics opt-out browser add-on, available at
Anonymous or Aggregate Information. We use Anonymous Information and Aggregate Information for activities including data analysis and research to gain a greater general understanding of cancer, cancer treatment and the related needs of patients and their caregivers. “Anonymous Information” means information where identifiers have been removed so that it does not directly or indirectly identify, and cannot reasonably be used to identify an individual. “Aggregate Information” means information about groups or categories of individuals which does not identify and cannot reasonably be used to identify an individual. For example, we may use Aggregate Information to compare the types of services our constituents utilize in one geographic location with another to understand how the two groups are different or similar.
Uses and Disclosures of Other Information. We may use and disclose Other Information for any purpose, except where we are required to do otherwise under applicable law. In some instances, we may combine Other Information with Personal Information. If we do this, we will treat the combined information as Personal Information. For example, we may work with data providers to tailor our communications to you, including fundraising and outreach communications, based on your areas of interest and other information about you. To do this, we may place cookies on your browser and combine IP address or browsing history with other de-identified data (such as a hashed, non-readable e-mail or postal address). We may then communicate with you through mail, email, or other channels.
Our data security protections
We seek to use reasonable organizational, technical and administrative measures reasonably designed to secure the information to protect Personal Information within our organization. Unfortunately, no data transmission or storage system can be guaranteed to be 100% secure.
Your privacy options and access
Contact Preferences and Restrictions. We respect your privacy and recognize that you may wish to limit the ways in which we contact you and/or share your Personal Information, including for fundraising purposes. SurvivorTesting offers the following options for restricting use and disclosure of your Personal Information:

  1. Do not contact me by postal mail.
  2. Do not contact me by telephone.
  3. Do not contact me by e-mail.
  4. Do not share my contact information with other nonprofit organizations.
  5. Do not contact me with fundraising requests supporting SurvivorTesting.
  6. Do not contact me.

To inform us of any desired restrictions, please complete an email to you contact us with an opt-out request, we will honor the request in accordance with timelines set forth in applicable law. Please note that if you opt-out of receiving e-mails, we may still send you important administrative messages, from which you cannot opt-out.

Notices and Disclosures
Children’s Privacy. SurvivorTesting does not knowingly request or collect information from any person under 13 years of age without parental consent. If you believe that your child has submitted Personal Information to SurvivorTesting without your consent and you would like this info restricted or removed, please contact us using one of the methods provided at
Links to Third-Party Websites. Our Services may contain links to third-party websites, whose privacy practices may be different from SurvivorTesting’s. This Privacy Statement does not address, and we are not responsible for, the privacy, information or other practices of any third-parties, including any third-party operating any website or service to which the Services link. Links to other sites do not imply SurvivorTesting’s endorsement of the products or services or privacy or security practices of those websites. In addition, we are not responsible for the information collection, use, disclosure or security policies or practices of other organizations, such as Facebook, Apple, Google, Microsoft, RIM or any other app developer, app provider, social media platform provider, operating system provider, wireless service provider or device manufacturer, including with respect to any Personal Information you disclose to other organizations through or in connection with the Sites or our Social Media Pages.
Information on Third-parties. If you disclose any Personal Information relating to other people to us, you represent that you have the authority to do so and to permit us to use the information in accordance with this Privacy Statement.